Charleston, South Carolina · Est. 2020
You are more than a diagnosis. You are a jewel.
A safe, supportive and empowering home for the epilepsy community. We exist so that everyone affected by epilepsy can thrive — not just survive — through education, inspiration and advocacy.
Advocacy Victory
Bill #935 passed the South Carolina House.
Years of education, outreach and testimony — led by our founder — helped advance legislation directing the SC Department of Public Health to create and distribute official seizure first-aid materials for state workplaces.
What We Stand On
Educating. Empowering. Encouraging.
Educating
We share knowledge to create understanding — from seizure first aid certification to the latest in treatment and care.
Empowering
We uplift and support those on their journey, because no one should navigate epilepsy alone.
Encouraging
We inspire hope and remind our community: you are not defined by a diagnosis. You are a jewel.
Why this work matters
1 in 0
people will develop epilepsy in their lifetime
0+
South Carolinians live with epilepsy
0
African Americans are diagnosed with epilepsy each year
1 in 0
people will have a seizure in their life
Sources: Epilepsy Foundation and community health reporting cited on our Knowledge Hub. Epilepsy touches every community — and hits communities of color hardest.
Meet Our Founder
Doctors said she wouldn't graduate. She built a movement instead.
At six years old, a classroom accident left pencil lead lodged in JenVon Cherry's left frontal lobe — and epilepsy in her life forever. Doctors predicted she would never finish high school. She earned her degree, spent 20 years in education, testified at the State House, and founded Epitome of Epilepsy to make sure no one in Charleston's communities of color faces epilepsy alone.
Spring Wellness Retreat · May 28–31, 2026
Four days in Charleston to rest, learn and belong.
A restorative, educational experience for people living with epilepsy — wellness workshops, guided conversations on confidence and self-advocacy, and a community that understands. Caregivers welcome. Hosted at the Crowne Plaza Charleston Airport Convention Center.
The Year Ahead
2026 — a season of purple
Feb
MUSC Health Fair
Community health outreach with MUSC.
Mar
Purple Plate Luncheon
March 21, 2026 · 1:00 PM · Crowne Plaza Hotel, Charleston. Sponsored by Neurelis and Jazz Pharmaceuticals.
Apr
Epilepsy Wellness Retreat
April 23–26, 2026 — connection, learning, and rest.
May
Spring Wellness Retreat
May 28–31, 2026 · Crowne Plaza Charleston Airport Convention Center.
“I enjoyed participating in the Warrior Walk this past November. It was a great experience to see people come together for a good cause.”
Every jewel deserves to shine.
Your gift funds seizure first-aid training, mentorship, support groups and advocacy across South Carolina. Together we are stronger. Together we make change.